Thursday, April 7, 2011

Celebratory Weekend!

Hello Everyone! Just checking in after our most recent visit with our specialist.
We had an overall good visit. It's so hard to relax in these appointments, with such long ultrasounds and not knowing what they are or are not seeing. It can get downright overwhelming at times. However, this hour long appointment was our shortest appointment with the specialist yet! We saw our sweet little girl, she showed us her 5 little fingers and waved at us, as well as moved around quite a bit. I'm starting to feel her move on a daily basis and hope Jimmy will be able to feel her soon. We are at 23 weeks and feel blessed to be this far! The only thing that the specialist saw (besides of course our heart defect which we follow up with the cardiologist) was that her head was measuring small and they would monitor that. The Doctor did go on to say that not everyone has a big round head. I looked at Jimmy :) and I'm not sure he appreciated that too much. :) She said this along with the heart defect could be a sign of Digeorge Syndrome, but again, we will not know that until she is born. We decided not to do the amino because if she has Digeorge, she has it and it will in no way change the course of the Doctors treatment from here on out, so we saw no use for it. The Doctors said it was only if we wanted to know. We love her regardless. Digeorge can be a broad spectrum. Some people live their entire lives with it and have no idea, some have stronger traits of it. There can be slow learning math skills and possibly some behavior skills, but we could also chalk those two things up to her genetics. :) We just continue to pray without ceasing (1 Thess. 5:17), that our little girl is healed, that her heart is fixed and that she graces us with her debut at full term.
We were told that the heart is structured and it just grows but doesn't change structure, while I absolutely trust and believe Doctors, I know our God is bigger than that and I actually pray that her heart is wholly healed. We have not because we ask not (James 4:2), so I am going to keep asking. As mentioned below, I'm trying so very hard to pray THROUGH the faith, with undoubtedly knowing that He, the healer, the maker and giver of life, can heal our sweet little girl. We are beyond blessed to continue to get good news and with each appointment, we have the anxiety that we won't receive good news, but each appointment gets better and better. Going from such grim prognosis to some hope is a miracle in itself! The hygroma is still gone, her neck is a little "thickened" from where the hygroma was, but the fact that it's gone is again another one of God's miracles. We thank him for that so very much.
Thank you all for the intimate, precious emails you sent after the below post. I had no idea it would generate such great conversation. Believe me, I'm a beginner in this praying "through the faith" thing, but it'll change your prayer life!
Please continue to pray for our sweet little girl, and for our upcoming appointments. We have four more appointments this month, and all of them are with different doctors. I will update after each one. The next one is Monday, April 11th with the pediatric cardiologist to follow-up from his first diagnosis (Tetraolgy of Fallot) We cannot thank you enough for your continued prayers, posts, scripture you share and again, opening your hearts on this journey with us.
We had celebrations galore this weekend! After our appointment early Friday morning, the wedding festivities of Lindsey & Mike began! Lindsey is Jimmy's sister, and also a friend of mine before I even really "knew" Jimmy.It was the.most.perfect.weekend.ever! I have been blessed enough to be a bridesmaid a few, 15 times in my life :) and it was an honor to stand beside Lindsey & Mike, I even "ugly cried" and DID NOT want to do that :). Her bridesmaid luncheon on Friday & rehearsal dinner that night were so nice, so genuine & sweet and just voerall outstanding. Not only were they each super nice events, they were so darn sweet! The toasts at each one were some of the sweetest I have ever heard. I had read that very morning about Paul and his writings on love and marriage and it was no coincidence (yet again devotional coincidences-I think not) that Lindsey & Mike's marriage is blessed. They have taken some wonderful steps in pre-marital retreats, and absolutely entered this sacred covenant with two of the most precious hearts. There was never a moment of stress before or during the weekend. Her planning was so organized and enjoyable (yes it can be-hers was!) Everything from even their surprise proposal in September was perfect.(I am a huge believer in surprise proposals and I don't think that I know of another bride that was THAT surprised). The wedding day was gorgeous, God graced us with beautiful weather, everything was in bloom, the reception was indoor/outdoor and it kept being referred to as "Father of the Bride" like and there is simply no other way to put it other than that. It was prefect. The dance floor became the dance room by the end of the evening with their terrific band. It's always nice when people dance at weddings but the ENTIRE room was filled to the brim that night of all of the "rock star dancers" Jimmy being one of the lead ones (video to come for sure!) It was a blessed event, a sweet and precious weekend from Friday to brunch on Sunday. We know they are enjoying their amazing honeymoon in St. Lucia!
A quick pic from our appointment. We were asked if we wanted 3-d pics, we hadn't even thought of having that done, knowing its an extra expense, but the tech told us that was one 'good' thing about seeing a specialist, (if there is a good thing about it) that they have the machine for medical purposes so why not. She took 3 cute shots of our sweet girl. I think Jimmy was astounded at the sweet face we saw on the screen. Thank you prayer warriors for praying and continuing to pray for this sweet face. Enjoy!

And one more....


Marlo said...

Awwe yay! And Yes, smaller than average heads are normal. M3 all have a small knoggin' :-) Great news, thanks for posting. Love you and praying for you still. Happy thursday!

Jenny said...

The blessing in having a smaller head...makes for a MUCH easier DELIVERY!

Anonymous said...

What a precious face and long skinny fingers! Lucky girl! So glad you shared! xoxo, Erin

Abby said...

She is so precious! I am so thankful for His blessings along your journey. I think about all (3!) of you often!

Love, Abby

Lee Ann Barton said...

how was your appointment today? Praying for you and your precious family.